CCFA Partners, sponsored by The Crohn's & Colitis Foundation of America (CCFA) is a web-based ongoing partnership of over 10,000 patients with IBD, aimed at improving quality of life for these patients through research and education. If you have been diagnosed with Crohn’s disease or ulcerative colitis, you can join CCFA Partners today. Twice a year you will complete a detailed online survey to provide information about your disease, treatment, and overall health. We will provide research results to you at regular intervals, and give you even instant feedback during surveys about where your responses fit in with those from other IBD patients.
CCFA Partners and Kids & Teens
In July 2013, we launched CCFA Partners Kids & Teens, a parallel study of childhood IBD. Nearly one fourth of individuals with IBD are diagnosed during childhood or teenage years. The needs of these young patients are different, as they are undergoing rapid physical and mental growth and development while coping with this illness, so we formed a dedicated research partnership for this special group. By joining, kids and their parents will complete online surveys twice a year, and receive feedback directed at the specific quality of life issues affecting kids and teens with IBD. MORE